Internet Portals, Databases & Starting Points

The following sources provide extensive access to primary and secondary material and/or provide numerous links to relevant sources.

Bioethics Reporter (1983-)
University Publications of America
QH332 .B36

• Current loose-leaf volumes kept update to date bi-monthly
• A comprehensive collection of resource materials to address the medical, legal, philosophical, religious, economic and social aspects of bioethics

Bioethics Web
http://bioethicsweb.ac.uk/browse/mesh/C0017398L0017398.html

• An authoritative source that evaluates English language internet resources in the area of bioethics & genetics
• Links to and describes genetics databases, web sites and articles available on the Internet

Biotechnology & Genetics Law (Megalaw.com)
http://www.megalaw.com/top/biotech.php  

Links to :

• Biotechnology & Genetics-Related Statutes
• Biotechnology & Genetics-Related Regulations
• Government Biotechnology & Genetics Law Resources
• Biotechnology & Genetics Law Web Sites & Resources

Dolan DNA Learning Center, Cold Spring Harbor Laboratories:
http://www.dnalc.org/  

In addition to a wealth of general information about DNA and DNA research,
this site includes extensive lists of links on the following topics:

• Bioinformatics
• Genes and Health
• Genome Research
• Journals and News

 
Genetics & Law (Marian Gould Gallagher Law Library – University of Washingon Law School)
http://lib.law.washington.edu/ref/genetics.html

• Selected internet resources, including government bodies
• Sources for state research

Genetics Resource Centre (University of Pittsburgh)
http://www.pitt.edu/%7eedugene/resource/  

• Gateway to an exhaustive list of links in genetics (not searchable)
• Organized by topic

Kennedy Institute of Ethics – Georgetown University
The National Information Resource on Ethics & Human Genetics
http://www.georgetown.edu/research/nrcbl/bioethics/nirehg/index.htm

• Funded by the National Human Genome Research Institute, National Institutes of Health
• Bibliographies on Topics in Genetics (see ‘Bibliographies’ above)
• E-Notes: E-notes is a new feature on the National Information Resource on Ethics and Human Genetics Web site. Each e-note provides a succinct description of ELSI (ethical, legal and social implications) issues on a specific topic in genetics. Several e-notes are in development. Eventually each e-note will lead to tips on finding current, relevant citations in bibliographic databases; the full-text of selected online resources; research assistance; and other related Web sites. The first two e-notes issued cover eugenics and genetic testing and screening.
• Genetics links
• Genetics organizations

Databases at this site of particular research value:

ETHX on the Web
http://www.georgetown.edu/research/nrcbl/databases.htm

• Journal articles, book chapters, bills, laws, court decisions, reports, books, audio-visuals, and news articles relating to bioethics and professional ethics

Genetics and Ethics
http://www.georgetown.edu/research/nrcbl/databases.htm

• Books, journal articles, book chapters, bills, laws, court decisions, reports, news articles and audiovisuals relating to ethics and public policy issues in genetics

National Human Genome Research Institute (NIH) : Policy & Ethics
http://www.nhgri.nih.gov/PolicyEthics/  

• Policy and legislation database
• Guides, including reports, publications and links on:
  • Privacy and discrimination in genetics
  • Genetics and the law
  • Health Issues in genetics
  • Biomedical research issues
  • Ethics research
  • List of online bioethics resources