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Web Sites by Topic

Genetics and Law: Guide to ResourcesFundamentalsInternet Portals, Databases & Starting PointsJournals & News SourcesFederal & State Law/GovernmentWeb Sites by TopicOther Libraries

Academic Sites & Research Centers

Bioethics: Academic Centers & Educational Sites
National Institutes of Health
http://www.nih.gov/sigs/bioethics/academic.html

  • Lists and describes bioethics academic centers & research sites


Bioethics Links (University of Pittsburgh Center for Bioethics & Health Law)
http://www.pitt.edu/%7ebioethic/links.htm

  • Another excellent list, with descriptions, of bioethics academic programs and research sites


CDC Genomics and Disease Prevention: academic organizations
http://www.cdc.gov/genomics/links/academic.htm

  • Includes useful descriptive information about site contents


Health law resources (University of Washington)
http://www.washlaw.edu:80/subject/medicine.html  

Genetics/Law & Policy (U.S., Foreign & International)

American Society of Gene Therapy (Policy/Position Statements)
http://www.asgt.org/positionstatements.shtml

  •  The American Society of Gene Therapy informs the media and public about new developments in gene therapy and gene therapy research through position statements


Australian Law Reform Commission
http://www.alrc.gov.au  

CAE [Center for Applied Ethics] Electronic Working Papers Series
The W. Maurice Young Centre for Applied Ethics, University of British Columbia, Canada
http://www.ethics.ubc.ca/workingpapers/deg/index.htm

  • Research papers by Centre faculty, staff and research associates that are judged by the series editors to be suitable in whole or in part for submission to a refereed journal, a conference, or for inclusion in an edited book
  • References include an abstract (text version), the complete paper (Adobe Acrobat), and a citation.


Catherine Baker, Your Genes, Your Choices, Exploring Issues Raised by Genetic Research (AAAS & DOE, 1999):
http://ehrweb.aaas.org/ehr/books/index.html

Centre for Law & Genetics, human genetics:
http://lawgenecentre.org/search.php?category=Human

The Genetics and Public Policy Center
http://www.dnapolicy.org/index.jhtml   

HUMGEN (University of Montreal Law School)
http://www.humgen.umontreal.ca/en/GenBiblio_q.cfm

  • Emphasis on ethical, legal and social policy


Human Genetics Alert (organization’s site: verify data)
http://www.hgalert.org/

  • An independent public interest watchdog group, based in London, UK committed to informing people about human genetics issues, and to putting forward clear policies that serve the public interest


Human Genetics Commission, U.K.
http://www.hgc.gov.uk/

Judicature, Genes & Justice Symposium (1999)
http://www.ornl.gov/sci/techresources/Human_Genome/publicat/judicature/

Bioethics

The American Society for Bioethics and Humanities (ASBH)
http://www.asbh.org/index.htm

  • “The purpose of ASBH is to promote the exchange of ideas and foster multidisciplinary, interdisciplinary, and interprofessional scholarship, research, teaching, policy development, professional development, and collegiality among people engaged in all of the endeavors related to clinical and academic bioethics and the health-related humanities.”
  • See especially: Task Force Resources/Reports and Resource Links


Bioethics.net
(American Journal of Bioethics, Albany Medical College & Union University)
http://www.bioethics.net/

  • Articles from the American Journal of Bioethics
  • News features updated weekly
  • Internet articles by topic


Bioethics Today, Electronic Bioethics Resource for the U.K
http://www.bioethics-today.org/   

UNESCO International Bioethics Committee
http://www.unesco.org/ibc/

  • The Bioethics Programme is part of UNESCO’s Division of the Ethics of Science and Technology in the Social and Human Sciences Sector
  • Includes committee documents
  • Includes or links to relevant international law instruments